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John was on exjade when his platelets were in the 20's. He started at 500 mg and worked up to 1000mg. You can look at desferal as an altnerative. If you have a picc or central line in, it's pretty easy to administer it to yourself at home. Or you can have them infuse it when you get transfusions.
Desferal works best when done over 3 -4 days in a row. John would do 5 days a week and rest for two.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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