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Started Revlimid - good results
Hello Kirby and Tom
We also have good results from Revlimid. David had your experience Tom, but as soon as his white cells began to recover the protocol was to take 5mg which worked. His Hb slowly rose and now after five months he is normal at 145. ten weeks since his last Tx. His platelets have been the last to recover. He did get a DVT which is a rare side effect but he is prone to clots so will be on warfarin for life.
I have heard that Revlimid often stops working eventually.
Has anyone been taking it for over three years? It is certainly a wonder drug when it works.
Best wishes to every one
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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