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Hi Helen
At the AA/MDS conf in Las Vegas one male patient had been on Revlimid for 48 months without a transfusion, counts near normal. One patient in Arizona who was on the first Revlimid trials at the Univ of Arizona has been on Revlimid for at least 5 years. These are the longest responses I've heard of for patients on Revlimid.
It seems that everyone is different but at least a few have had long responses. Others seem to stop in 1-2 years.
Dr. Steven Gore related at the AA/MDS Conf that Dr. Silverman in NY has had some patients on Vidaza for 8-9 years, those are the longest responses I've heard of for an MDS drug. Vidaza seems to be a good choice if and when Revlimid quits or one progresses to leukemia. It's no where near as convenient as one capsule a day but it may be the best in the end.
Let's hope we can last a long time on Revlimid.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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