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Old Tue Feb 19, 2008, 09:45 PM
Helen Robinson Helen Robinson is offline
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Join Date: Oct 2006
Location: NSW Australia
Posts: 32
Response to Revlimid

Kirby,

How are you progressing? David has been having transfusions since before Christmas and at the last BMB on feb 3 they decided to increase his dose back to 10mg. Because he is on an experimental protocol we were very pleased.

I hope his counts do not collapse as they did last time but we are being positive. He is much better physically than when he began the treatment last April. We have travelled closer to the hospital for peace of mind so I am having an enforced rest with time to use the computer.

I hope all is well with you

Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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