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Old Wed May 7, 2014, 05:19 PM
MaryS MaryS is offline
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Join Date: Nov 2013
Location: Herndon VA my father in New Orleans,La
Posts: 24
What is your general feeling with MDS?

Hi everyone! How are you feeling? That is what I am trying to understand . When I ask my dad how do you feel , mostly he says weary. Before he started his chemo his RBC's 2.45 Hgb was hanging around 9.1- 10, . He has had 2 rounds of dacogen. His RBC as of 3 days ago was RBC 3.18 and HGB 10.4. What I want to know at what point do you not feel weary. My dad usually says he can't explain how he feels. Can you explain the feeling for me. I can't wait to find out what his counts are tomorrow. I hope they have gone up since Monday. My dad starts his 3 rd round of dacogen tomorrow.
Is it possible that this medication could make his counts almost normal? I want him to feel not so weary. My dad has other things going on but I am trying to see if his description of how he feels is like most people with MDS. Thanks for your help.
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Mary, daughter / caregiver of Bob age 77; on Oct 1 2013 dx with MDS/MPN overlap +Trisomy. Jak2 at d< 5 blast. , and on March 1 2014 Dx with AITL non Hodgkin's Lymphoma.
Tx: decitabine/prednisone/Jakafi?
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