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Soliris is used to help prevent blood clots and give you more energy when low hemaglobin and fatigue are caused by PNH hemolysis (red cells breaking down). It will prevent kidney damage. Studies are showing the Soliris is so good most PNHers can now live a normal life span! It is best to have a PNH specialist advise you on whether or not you need or will benefit from Soliris. he/she can review your past flow cytometry, tell you if done correctly or repeat it if not.
Susan
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AA/PNH Dx 1998, Warfarin, Soliris
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