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I need to understand this disease
My mother was diagnosed with MDS about 2 - 3 months ago. Her red blood cell counts were at about 10 and they were just watching and waiting. Today she saw her hem/onc and her counts were at 7. He started her on Aranesp
(sp?) and iron pills 2 times a day. She has to go back in on Monday and get another injection and is pretty confident her counts will come right back up. I guess my question is will she be off the injections once her counts are up or is she on them indefinately? Is this how this disease works, normal one minute and then in bad shape? I guess I need to know what to expect, so any light that can be shed will be greatly appreciated.
Suzanne
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Mom 69 diagnosed with MDS RA 3/08
TLK-199 started 7/17/08 - no response
Vidaza started 12/15/08 - no response
Dacogen started 01/10 - no response
Bone Marrow Biopsy 10/10 - 13% blasts
Bone Marrow Biopsy 12/22/10 - 45% blasts - AML
I have an angel 1/4/11
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