|
Hi,
This iron thing is weird. I have NO iron in my bone marrow. I was given an iron infusion (dangerous, because I'm allergic) and then had a repeat bone marrow a couple of weeks later and still NO iron in the marrow.
The doctor also wrote a letter to my GP saying that I didn't have any reticulocyte response to the iron infusion. I was told to never have iron again, just transfusions.
I'm a little concerned because I have had in excess of 60-70 units (too many to remember) of blood but I haven't had an iron level done for about 18 months.
I wonder if there is some iron blocking mechanism that kicks in and prevents iron getting to the marrow.
Just one of lifes' mysteries.
Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
|