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Old Mon May 18, 2015, 08:42 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Kate - aaah ... MPN (not MNP) makes a lot more sense. I found this site but you may already have visited it - http://www.cancerresearchuk.org/abou...tive-neoplasms

Perhaps the LFs differ from area to area. I've never received any mail asking for donations. I get the newsletter and that's it. I'm pretty sure the telephone forums must still be functioning as they were recommended to me but I've never participated. In our area each disease under the leukaemia umbrella seems to have it's own face to face meetings through the year. Again, I haven't yet participated in any of these.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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