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Paul,
When I went on vidaza about 7 months after transplant, I saw results within the first month. I was showing preliminary signs of relapse, but the vidaza seemed to help my transplant out quite a bit. I only went through 6 months of treatment, but if I recall correctly , my platelets almost doubled and my HGB went up by about 3 points as well from about 8.5 to 11.5 - again this has been a while, but that is what I recall. My attempts at using vidaza pre-transplant did not have any seemingly positive results - everything just declined, so I think that the new marrow responded better.
I hope all turns out well on your second biopsy and that none of this additional treatment is needed. I know that we talked about a DLI with my doctor as well, but his experience seemed to suggest that there was not much difference between DLI and non DLI if the vidaza worked in the first couple of cycles.
Good luck with all of the results and decisions.
Dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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