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Old Fri May 18, 2012, 03:46 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Desferal

Hi Delwyn,
I hope you have got a port-a-cath and that you will get Desferal in the port. I started with Desferal Aug 2007 and continued to get it during four days in connection with txs until Sept 2010 when I didn't need txs due to good response to Thalidomide.

The Desferal was given from a small hope-pump, that looks like a lemon.
http://www.iflo.com/prod_homepump.php
The pump was put into a pouch, that was tied around my waist. From the pump the Desferal went into the port. The needle was taped as your doctor told you. I had no problems when I slept but had to tie the pump around my neck and take good care when I took a shower.

Desferal has been used during more than 40 years and I had no adverse effects but my eyes and the hearing was controlled once a year.
Kind regards
Birgitta-A
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