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Old Thu Aug 22, 2013, 09:13 PM
curlygirl curlygirl is offline
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Join Date: Jun 2013
Posts: 151
Friedbrain,

Do you live where you can go to another hematologist? For my son's Aplastic Anemia we visited three hospitals - one happened to be Johns Hopkins that does things differently than anyone else, then two doctors that do ATG/Cyclosporine. Aplastic Anemia is usually autoimmune related. I'm not saying that's what you have but autoimmune diseases, including Aplastic Anemia and Systemic lupus erythematosus (SLE), can mess with your bone marrow, and the first line of defense for Aplastic Anemia is immune suppression (ATG/Cyclosporine) if you don't have a matched sibling donor.

Hopefully all will be fine but it is good that you're looking into it. If it is Aplastic Anemia many people with a mild case can go without treatment. Severe and Very Severe cases require treatment. My son's case was Severe.

I think they always run a cytogenetic study on the sample, to determine if there is a chromosomal issue or not. Here is a great thread explaining a cytogenetics report.

http://forums.marrowforums.org/showthread.php?t=3773

I'm sorry that you are going through this and I hope you have answers soon!
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