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Old Thu Aug 22, 2013, 11:30 PM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Hey FriedBrain!

I echo the idea that you might want to get a consult from a more communicative hematologist, maybe at a big cancer center, maybe an MDS specialist.

I'm not sure you should trust the 30%, since the sample wasn't all that good (I had one of those once. Not a fun thing.) But they should have been able to give you some results from the aspiration (that's the burning part where they draw blood out of your marrow before they grind the chunk of bone and marrow out of you. The aspirate, as I recall, is where they would find dysplastic forms (messed up baby blood cells), as well as a blast count.

The core is where they get cellularity. Most folks with MDS have too many cells in the marrow (hypercellular), but some have too few (hypo cellular) and some (like me) are normocellular, but still have MDS.

Folks with Aplastic Anemia are pretty much by definition hypo cellular. You are right about the age 46 = 54% normocellular.

Definitely get a copy of the report. If you have trouble puzzling it out, folks here can help.

And get a new doc who talks.

Good luck with the new job!

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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