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At some point you may want to consult with doctors at Hopkins. The High Dose Cytoxan treatment used to treat SAA has also been used in other autoimmune diseases like lupus, MS, scleroderma, etc.
They won't treat moderate AA with HiCY but if your autoimmune issues are refractory to treatment, they may do Hi CY. It has the potential to address many of your issues.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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