Thread: CMML
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Old Sun Apr 15, 2007, 07:00 AM
choijk choijk is offline
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Join Date: Mar 2007
Location: Los Angeles, CA
Posts: 47
CMML

Hi,

I was wondering if anyone on the forum new anything about CMML. I was just doing some research online and found on one website that it is a subcategory of MDS/MPD. My dad was diagnosed with MDS/MPD however, a hematologist from UCLA indicated that he did not agree with the MDS/MPD diagnosis and thought that my dad is RCMD.

I found that the patients dx with CMML tend to have higher monocytes in their white blood cell counts. My dad ranges roughly from 13-18%, although his white blood cell count remains normal.

I am not too familiar with CMML and was just wondering if anyone can share their thoughts and experiences with me. I am going to bring it up to our doctor in our next visit.

This has been such a roller coaster ride. My emotions are everywhere but the worst of it is, I am in constant fear. Fear for just too many different reasons. I know I should focus on "today" and not "tomorrow" but it's hard not to when I am trying to research the best treatment plans for my dad and to learn more about his condition. I am just so scared right now.

Anyhow, thank you for any advice and knowledge you may be able to share. God bless everyone.
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June, daugther. 71 yr old father dx on 01/13/07 with MDS/MPD - RCMD/Secondary MF). No excess blasts no excess chromosomes. Hypercelluar 70-80%. Low hgb. Transfusion dependent every 3-4 weeks/2pints. Began Procrit on 03/27/07. No progress thus far. Taking Folic Acid, B6, CoQ10, and Cod Liver Oil
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