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MDS and myelofibrosis
Hi lacanada,
I am one of the patients of this forum who has MDS/MF. My preliminary dx was MDS but after two BMB:s the dx was canged to MF (myelofibrosis). I had very severe bone marrow with few cells at dx. My spleen is not enlarged as in 95 % of the MF patients and I am JAK2 negative. After one year I got neutropenic fever after 3 infections. A new BMB showed MDS.
Kind regards
Birgitta-A
73 yo, dx MDS 2006. Transfusion dependent at dx. Supportive therapy with blood txs, Desferal and Exjade for iron overload and Neupogen for low WBCs. Since 2010 Thalidomide + Prednisone with positive result. Latest tx Sept 2010. Latest counts HGB 123, WBCs 4.0 and platelets 85.
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