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Old Thu May 12, 2011, 03:40 PM
Sally C Sally C is offline
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Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 423
New Promacta (Eltrombopag) Clinical Trial at NIH

Hi Birgitta-A,
What an honor to hear from you. I remain amazed at your knowledge of these diseases. I thought I was fairly well educated in MDS until I started reading Marrowforums. I realize I haven't even scratched the surface.
My husband's platelets never responded to Campath (4/09). The whites responded as well as the reds to some extent. He has done pretty good since 2009 even though his platelets have stayed in the teens except after transfusions. His reds have stayed in the 7 to 9 range even after transfusions. I think he has hit 10 maybe once. It's amazing how the body can adjust.
NIH really hasn't expected a response to Promacta until after he started taking the full dosage, which was yesterday (5/11/11) so we'll see. At least that has been the case with their AA patients.
Thank you so much for all your input to the forums. I am sure you have been instrumental in educating many of us.
God Bless and take care,
Sally
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