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Old Mon May 16, 2011, 08:18 AM
Sally C Sally C is offline
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Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 467
Promacta

Hey Birgitta-A,
You are correct that this is the second trial for MDS in addition to the trial/s for AA. Don is the first patient for low to Int. 2 MDS. I believe the other trial is for high risk MDS and maybe AML as well.
I have been told exactly what you said - that most MDS patients succumb to infections and bleeding as opposed to the MDS/progression to leukemia.
Don's whites are the only line that have normalized. But lately, the platelets and reds have slowed their drop but the whites have been going in and out of normal. His neutrophils were 1.5 last checked. Seems when he gets one line doing better another line goes down. He will get a CBC tomorrow (5/17) - his first since reaching max dosage (150 mg.) last Wed. May still be too early for a response but we'll see.
I'll keep you posted.
Thanks again and take care,
Sally
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