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Old Tue Mar 15, 2016, 11:57 AM
mharrell mharrell is offline
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Join Date: Dec 2008
Posts: 11
Yvonne,

Try posting in the forums at pnhdisease.org. There are a lot more PNH patients there than here, and AA+PNH is common. There are also a couple of Facebook groups for PNH. At pnhdisease.org -> PNH Forums -> PNH Daily Posts, you'll see a thread entitled "Where is everybody?" and in that tread are links to the Facebook groups.
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