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Old Wed Aug 10, 2016, 09:34 AM
KatailS KatailS is offline
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Join Date: Apr 2016
Location: Avon, CT
Posts: 41
Thank you Cheryl C
I do get copies of all lab work and started tracking my results on a spreadsheet.... it really does help to visualize what is going on. It is interesting to see that there were smaller abnormalities back in 2012 that may be related to my slow decline. I am trying to locate labs prior to 2012 to see how long my levels have been 'off'.

Yes, I do try to take good care of myself and live as fully as I can. Maybe I can't be doing boot camp workouts anymore (tho I will keep tryin ) but I am trying to stay as physically fit as possible. Any suggestions of diet or exercise that is blood-building friendly? I do take iron, B12, K, C and D3 religiously. Got lots to live for with my four kids and their bright futures
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Kathie - 54 yr old mother of 4, pancytopenia since 11/2014, moderate AA 8/2016, small PNH clone (now increasing), monitor bloodwork every three months
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