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Hello XtremSAA,
Neil, and others, had some great suggestions about what to put on a medical alert bracelet as well as what to carry in your wallet and put on your cellphone. Hopefully, you'll never have to use any of them, but good to be prepared.
I just pulled out the alert bracelet I had when I was first diagnosed with VSAA and on it I had: my name, diagnosis, my doc's phone number, my husband's phone number and "high bleeding risk." While all three of my cell lines were ridiculously low (can you say a neutrophil count of zero?), the bleeding risk from low platelets seemed to be the most critical thing for an emergency responder to know if I was in an accident.
I was also diagnosed with a thymoma (a year after my VSAA diagnosis), so would love to chat with you about that. Send me a private message if you'd like.
Joyce
Diagnosed VSAA in Nov, 2012;treated w/ ATG+Cyclosporine; relapsed in Jan 2014 after taper and again Feb, 2016. Currently on 75 mg cyclosporine 2x day.
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