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Hey Freedom!
I'm very sorry to hear about the severity of your wife's MDS. Given her 5q deletion, was there any thought of trying revlimid or thalidomide?
By "a round of Vidaza" do you mean she tried it for six months or so? I understand it can generally take that long to work.
I fortunately have not had very, very low platelet counts, but I gather from other folks on the list that there's a good deal of variation in how people respond to low platelets.
It's an odd disease with many variations; I'm always skeptical of predictions about life expectancy.
Take care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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