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Hi Loxy - I lived with chronic idiopathic (unknown cause) neutropenia for around 6 years before finally developing MDS. Like you I had and have a very healthy lifestyle. It's important to monitor the bloods so that if anything changes you can have intervention as early as possible.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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