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Old Sun Jul 27, 2008, 10:38 AM
Jill2008 Jill2008 is offline
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Join Date: Jul 2008
Location: Redding, CA
Posts: 84
What do we tell our 14-year-old?

I was recently diagnosed with MDS but we have decided to hold off on telling our 14-year old daughter until we gather more information about the bone marrow transplant and when it will happen. She is trying out for the volleyball team at school in a couple of weeks and we're afraid if we tell her she will not give her 100%. This means alot to her. She knows I am not well, but doesn't know of the diagnoses yet. The question I have is how much of that information do we share with her when the time comes?

Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58 , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
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