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I didin't put all the events on the tracking spreadsheet I made but from what I can recall this is how it went down:
1) We had his EPO levels checked on 8/22/03. They were at 96
2) He didn't start Procrit until his retic % was at 2 - 2.5%. This was based on input from our doc at Hopkins. That was January 2004
3) He started 40,000 units of procrit/weekly on 2/9/2004.
4) His last transfusion was 4/11/2004
The improvement came in the second month. He was getting red cells (two units) every two weeks until 3/22. So on 3/22/04 he got a red cell transfusion and went 3 week before needing another. On 4/11, we decided to do just on unit of red cells and from then on, he did not need anymore.
So the response was seen in the interval versus the actual HGB. You can also look at retic% and Absolute retic count.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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