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Rose, I don't live far from you in Sebring, FL. I have been on a long "watch and wait" list with MDS since 2006.
Nausea, yes I get nausious just from the MDS in general. It's gotten worse in the last year or so. Some mornings it's all I can do to keep my coffee down. Sometimes, around meal time, it just gags me to want to eat.
I don't think it's just his platelets which are mainly a blood clotting agent of the blood. It is probably from his MDS raeb-2 and the fact that all three lines have probably dropped from the Vidaza. I'm not on Vidaza, but from what I've read the WBC, RBC and Platelets drop initially before they come back up. Others please chime in.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
Last edited by Dick S : Wed Mar 10, 2010 at 11:28 AM.
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