Today is the start of the steroid trial. If she doesn't respond to them then they are out of ideas. They aren't giving her G-CSF injections with the steroids though which I thought strange but I trust they know best. Prof Mufti has taken over the case and he is a world leader in blood disorders, plus Prof Marsh is still on the case too as she is the UK's leading expert on bone-marrow disorders. They are both scratching their heads with this one though! If they can't figure it out who is there to escalate it to?
A stem cell transplant seems like the only probably cure, but it's a dangerous procedure considering she doesn't seem that unwell at the moment. She'd been home nearly 6 weeks with no infections. Yesterdays blood test was still showing neutrophils at 0.02 which is as good as 0 apparently. They originally emailed 0.2 and we got excited, then they emailed back to say they'd made a mistake and it was indeed 0.02
