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Thank you for your answers. We are facing some very difficult decisions. We have encountered complete opposite opinions regarding the SAA from top docs in our area... transplant now, don't wait for any complications vs avoid transplant at all cost unless absolutely necessary....... we have also had different opinions on what meds to use for refractory SAA.... There are not any treatment plans with guaranteed success or even great odds in our favor. I know that some have walked away from a transplant feeling great but many many many more have gvhd.
Question:
I wonder if there is a survey regarding quality of life after a transplant??
My understanding is that Leukemia patients benefit from some gvhd (to assist in the fight against Leukemia) but SAA patient with slight PNH clone do not benefit from any gvhd. Am I thinking correctly?
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