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Old Sat Dec 21, 2013, 04:21 PM
dfantle dfantle is offline
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Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
Quote:
Originally Posted by Relentless Against SAA View Post
Thank you everyone for your answers. I have a feeling we will end up in transplant eventually. As of right now, best match is a 9/10. Not sure where the mismatch is but we see the transplant doc soon to find out. Praying that a 10/10 match is found.
Wishing you all the best with your decision. Choosing the treatment protocol and transplant center can be such a difficult choice.

If you decide to move forward with a transplant, & are able, I encourage you to choose a center where they have significant transplant experience. These centers know how to manage most any issues which may arise & this knowledge & experience can make all the difference.

Unfortunately there are no guarantees with GVHD & although research is underway to try and better understand how to minimize GVHD, answers & protocols may still be several years out. Though as others have mentioned, the younger the patient, the lower the potential incidence.
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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