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Old Sat Aug 18, 2012, 05:07 PM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
Thanks, girls, that was a big help.
Birgitta - Al's platelets are already nonexistent so I'm wondering what that would mean. He did experience some lower numbers with Vidaza (never enough to need a transfusion) but the numbers bounced back - unfortunately, a small bounce. This was back in 2010.
His problem is low platelets and just here recently his RBC's have been low but his WBC's are fine.
I guess we'll just talk to the doctor about it this week. I just worry that I caused his blasts to go up by wanting him in the Promacta trial, so I'm feeling a little guilty.
Of course I want to keep him here as long as possible (truth be known - I want the miracle) and worry that another treatment of any kind might kill him.
Thanks for your knowledge and guidance on this forum.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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