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Linda, it is so very sad to read your post. I always wish that I could wrap my arms around you and take all of this away, but I know in my heart that isn't possible. You and Al are doing the right thing, you want to have hope, because without it, there is nothing.
One month ago Dean's numbers were very low, his platelets were 3, and his WBC 0.3, Dean's oncologist gave him Neupogen for two weeks, thankfully his numbers improved enough for him to take the second cycle of Dacogen. One month ago the oncologist said he didn't know if he could do anymore for Dean, today we are getting ready to begin Dean's third session of Dacogen.
We are praying for you and Al, and for a miracle.
Happy Belated 75th Birthday Al. You and Linda are in our thoughts.
Sending lots of hugs your way!
God Bless!
Patti and Dean
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Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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