The Bone Marrow Failure Disease Research and Treatment Act, which was introduced to Congress
last year, was re-introduced by Representative Doris Matsui [D-CA] on February 26, 2009.
Now known as HR 1230, the proposed legislation seeks to establish an Acquired Bone Marrow Failure Disease Registry at the Centers for Disease Control (CDC), direct research into environmental causes of these diseases, coordinate outreach and educational initiatives targeted to minority populations, and improve diagnostic practices and patient care for bone marrow failure diseases.
As of March 7, 2009, these 19 Members of Congress have signed on as co-sponsors:
Neil Abercrombie [D-HI]
Michael Arcuri [D-NY]
Sanford Bishop [D-GA]
Madeleine Bordallo [D-GU]
John Conyers [D-MI]
Diana DeGette [D-CO]
Jo Ann Emerson [R-MO]
Anna Eshoo [D-CA]
Barney Frank [D-MA]
Raymond Green [D-TX]
Mazie Hirono [D-HI]
Peter King [R-NY]
John Lewis [D-GA]
James McDermott [D-WA]
James McGovern [D-MA]
John Murtha [D-PA]
Allyson Schwartz [D-PA]
Christopher Van Hollen [D-MD]
Frank Wolf [R-VA]
If your U.S. Representative is NOT on this list, please go to the
Grassroots Action Center page and click the
Take Action button. Personalize the sample message to tell your story and why you want your Representative to support HR 1230.
If your Representative is already a co-sponsor, be sure to call or email them to thank them for their support.
More information and the complete text of
HR 1230 is available from the AA&MDSIF.