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Oh, I thought telomere testing was standard, is that not the case? They tested my sons in 2011. At that time a lab Canada was the only place that tested them, I had to pay out of pocket for the test and then get reimbursed (out of network) from my insurance.
I have a Google alert set for any news on telomeres, I haven't seen this article yet so thanks for the heads up. I have my alert set for weekly notices though, so hopefully the alert works in the next few days.
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
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