Vidaza disaster
Hi Deb:
I'm sorry it has turned out so badly. I think the doc is an idiot, and he should be fired. Is there any reason why he hasn't been fired? As long as your Dad has even a spark of life I don't think you should give up because of anything you hear from that clod. He has lived over three times longer than predicted. Please try to find a hem/onc who has a clue ... you said it is too late, but finding the right hem/onc might change the whole picture. You had to assert yourself to get a blood draw, so now is the time to get into a super assertive state and fight for what you think is best for your Dad. I still think he could use some blood.
Best wishes and hoping for the best.
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Middle-aged (83 yo) dx Nov 4, 1997 w/MDS-RA+pancytopenia, tx about 18 mo. Responded to EPO+G-CSF. Ferritin dropped from 2500 to 480. Three non-fatal heart attacks, five non-fatal strokes and a lot of TIAs. Otherwise in very good health.
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