No NORD PNH Meetings In 2018
I have been informed by a rarediseases.org representative that NORD is not hosting any PNH meetings in 2018. She did direct me to
Any new PNH patients out there? I don't remember if I posted this before, but I was informed last year that my donor was interested in communicating with me, but so far I have not heard anything from them. I will be sure to pass anything along if I ever do.
Hope all is well for those of us impacted by PNH
MARIO, 46, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD.