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My husband is also low risk (RAEB 1) but he gets tested every month because he plays hockey. If his platelets go below 40, he has to quit playing.
We just had the Myeloid Gene Panel done and are awaiting results.
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Husband (61) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome. CEBPA mutation 
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