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Old Thu Feb 20, 2020, 05:50 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Ray. I also live in Denver and I am treated by CBCI at PSL. I am not a veteran, but I read extensively in respect to bone marrow failure diseases. From what I can tell there is research showing an increased risk of MDS due to benzene exposure. As you know, there is an increased risk of MDS due to age and being treated for other malignancies. In respect to PNH, Dr Ilene Weitz at USC told me at a medical conf/ patient meet-up that her research has shown a higher incidence of PNH in places such as Texas near oil and gas drilling/ production. You are also aware that MDS, PNH, and AA are rare diseases, so I am guessing that the VA has somewhat limited experience in claims related to these diseases. (Just a guess) Please let us know your outcome.


Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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