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Old Tue Mar 10, 2020, 07:56 PM
DanL DanL is offline
Join Date: Dec 2010
Location: Denver, CO
Posts: 585

This biopsy report is a difficult read and doesn't seem to point to a clear diagnosis. You may be at the beginning stages of some sort of MPN, or just experiencing sine form of bone marrow strain for other reasons like temporary illness or vitamin deficiencies. but there are only indications from what I see, and not a smoking gun if you will.

Many categories of blood diseases are difficult to obtain a clean diagnosis initially as the features frequently overlap. I am not a doctor, so please take the post with a grain of salt, but I think you are due for more testing and observation.

Please update us when you hear more.

MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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