Fri May 2, 2014, 04:57 PM
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Member
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
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Quote:
Originally Posted by onlyforthenight
Hello! I am new to this site. I was diagnosed with AA in 2009 and treated with ATG and cyclosporine. It took seven months to recover and I lived a normal life, transfusion free, for four years. The AA returned in 2013 and I repeated ATG and cyclosporine. Unfortunately it hasn't worked this time. I am now on track for a BMT.
I'm curious to know your thoughts on the eltrombopag (promacta) clinical trial at NIH. I want the BMT, as it is a proven treatment method, whereas the clinical trial is still in experimental phases. I know promacta has worked for many patients, but in all candor, I'm ready to be done with this phase of my life and do not want to wait any longer. I feel that I'm making the best decision for myself, as confirmed by my doctor at UCLA, but I just want to know your thoughts.
Thanks!
---Chrissy
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Phil Page who has posted here has a blog. Here is the blog. He is on that trial.
http://www.bonemarinara.com/
You can send him a PM from this site.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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