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Old Mon Apr 18, 2016, 06:30 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Neuropathy Question

Hi - I know there is a thread running about PN under MDS - but I think my situation is different -

Seven months post transplant and I'm having some PN in my toes - feels like cotton balls between my toes and balls of my feet. Also my hands and feet are sensitive to hot and cold water - My hands have always felts funny, especially after bout with GVHD - and have improved - but the numbness in my feet is a little different. Doctor thinks its probably from chemo - wondering if anyone else has had neuropathy several months post transplant - and if it gets better or worse - and if there is anything I can do - and what was the cause. I'm still on a lot of anti-GVHD drugs and anti bacterial,viral,fungals - but nothing new.
Thanks
P.
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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