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Old Thu Apr 21, 2016, 08:22 AM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Thanks Chandra for you post - I'm not on Cyclosporine but am on Prograf (tacrolimus). I take 1.5mg & 1 Mg daily - They recently lowered the dose from 1.5x2 - due to high levels in blood tests - which roughly correlated to the neuropathy now that I think about it. Maybe the Prograf is still too high - I'll make sure to take a hard look next visit.

Did you have neuropathy the entire time you were on Prograf or did it arise after a period of time? How long were you on it? How are you doing now - are you still on anything? Glad to hear it went away.

Best wishes,
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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