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Old Sun Apr 24, 2016, 10:51 AM
Chandra4intx Chandra4intx is offline
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Join Date: Jan 2014
Location: Flower Mound, TX USA
Posts: 18
Hi again Paul,
I was on Cyclosporine for about 4 months after ATG, and then Prograf for approximately 7 months post-transplant. It is hard to recall if I had the neuropathy the whole time I was on the Prograf. There were so many symptoms right after my transplant. I feel like it was pretty constant. I remember also being concerned that it would be permanent.

I am 2 years post transplant and only on Protonix for terrible reflux that never resolved and hormone replacement therapy due to chemo/radiation causing premature menopause. Thankfully not on any steroids or immunosuppressants!

Hopefully, you can adjust your Prograf and get some relief!

Take care,
Chandra
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Chandra, 40 y/o wife and mother of 2 girls; DX SAA Dec 2013; H-ATG Jan 2014; Prior to ATG:HGB 8.3, HCT 24.3, Platelets 10, WBC 1.9, RBC 2.67, ANC 100; April 30, 2014 matched sibling donor BMT; currently off meds and counts are normal!

Last edited by Chandra4intx : Sun Apr 24, 2016 at 11:02 AM.
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