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Old Thu May 5, 2016, 03:30 PM
Amyleighd Amyleighd is offline
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Join Date: May 2015
Location: Nags Head, NC
Posts: 16
Update: Today is day +30 for the 2nd transplant and things are going better this time around so far. The fever he had in the beginning they seem to think was from the increased radiation. (It was increased by 50% from the 1st transplant). Today his white count was up to 5.2 (highest its been since Dec). Yesterday they stopped the Granix shots in order for the bone marrow to start producing red cells and platelets so we hope to see those come in soon. Today however, we did get the news that he has that HVV6 virus again and will go back on the Foscarnate for 10-14 days. He has not had much of an appetite, which seems to be pretty common. Getting him to eat can be a challenge! He also has some shortness of breath and is retaining some fluid and the Foscarnate will only make that worse. So currently we have a balancing act going on with the meds!! Once he makes it to day 35 with no GVHD they will stop the mycophenalate and that will help his immune system begin to fight off viruses on its own. Thank you all so much for the input and support on this forum.
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