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Old Fri Oct 2, 2015, 02:57 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Kamara,

It's important to know how your aplastic anemia is classified. If it's not severe, then they may not proceed with a transplant. Just because your HGB did not hold after your last transfusion doesn't mean you're not making red cells. I know it sounds weird but it can take a while for it to catch up. They should evaluate your WBC, reticulocyte count as well. They should also check to make sure your EPO levels are at or above 500.

It's good to prepare for a BMT and that you have a match but be sure to get a definitive diagnosis of the stage of your AA. This can matter for insurance purposes too.

It's also good to get a hold of all your test results. Track your CBC's to watch for trends. Keep a record of all your baseline tests from your initial work up. Having a baseline of your chem panel, iron and ferritin as well as B12, folate, copper, zinc and vitamin D levels were. All the genetic testing as well as testing for PHN clone.

Go back and pull it all together so you or any other doctor will have the complete picture. It's good to have if you decide to go for a second opinion also.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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