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Old Fri Nov 15, 2013, 07:27 PM
rainbows and glitter rainbows and glitter is offline
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Join Date: Nov 2012
Location: Alaska
Posts: 11
Thanks everyone

I am just reading back through these posts and I am at day46 right now just got discharged. I put up a new post about my status and everything, and I think I am doing very well. Some gvhd but on steroids. I am trying to take your advice and one day at a time it...it's difficult with all the meds I feel anxious a lot. But I am gonna just keep putting one foot in front of the other till I get home. It sure helps to hear about other people going through this, you definitely feel a disconnection from the world after you come out of the hospital. Especially here it's so hectic compared to home. I only hope I can weather the storm till I get to see my family and great state Alaska again..
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27 year old female diagnosed MDS RCUD 2012, GATA2, multiple carcinomas in-situ, SCT 10/03/2013 @NIH, chronic GVHD starting 11/2015
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