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My deepest sympathy Dan92. Thank you for your detailed account.
We don't often hear about the really serious cases of GVHD - maybe because people are too sick to post or don't want to scare us. Sometimes we can get the impression that the majority of BMTs are successful long term, which is definitely not the case. We need to hear both sides of the story in order to make an informed decision.
Your Dad was still young and by making the courageous decision for BMT he was doing his best to survive for you all and I greatly admire him for that.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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