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Old Sun May 8, 2011, 11:03 PM
Julianna Julianna is offline
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Join Date: Feb 2010
Location: Victoria, Australia
Posts: 184
Thank you for that. Yeah I think the Leukemia Foundation is a good place to at least talk through some of these things. And yes Neil, you're probably right about my Mum. I really wish I didn't feel like such a burden still. I wonder if a transplant is really worth it. I've made a real mess of my life and now I feel a bit stuck with not many options for the future.

I've been seeing a psychologist and other specialists to try and help, but I've seemed to come to the end of answers. Thinking that whoevers marrow that I have matched, would be better used on someone else who would appreciate it more. But to be honest, I'm scared out of my brain at the same time, as to how this disease is going to progress.

I know I keep bringing up these same things all the time, but it still isnt resolved for me. When I fight this disease - to keep alive - I need a reason to fight for. And I just dont have one. I just feel like giving up, and that would be better for everyone involved. Thank you for listening to me. Not sure where else to go from here. A lot of these issues are longstanding, and hard to resolve.
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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