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Old Wed Jul 17, 2013, 06:19 PM
curlygirl curlygirl is offline
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Join Date: Jun 2013
Posts: 151
Hopeful,
Thank you for responding! My son weighs around 60 lbs and is on 2ml of cyclosporine twice a day. I certainly hope the ATG/cyclosporine works. It would be so sad to have my son go through this and have it not work. The day after his ATG ended and we were still in the hospital he asked what would happen if this didn't work, and I said "We'll just do this again," and he gave me a look that I associate with people at work when they're thinking "what are you thinking, you moron?" but don't say it out loud. It was actually pretty funny but of course sad. Thank you for your responses, too. He is drinking more now that he's feeling better so hopefully that will help the urine situation. They'll check his creatine at his appointment on Fri. He's very pale so I know he needs blood. I'm hoping he will be ok until his appt. I'm not good at distinguishing what his skin looks like when his hemoglobin is in the 5's vs. the 6's, but I can tell he's below 7. He seems to have energy, though.

Thank you for responding to my questions and making me feel better!
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