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Old Thu May 26, 2011, 11:56 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi edithr,

I had the exact same symptoms when on the higher doses of cyclosporine right after ATG. This is listed as one of the drug's side effects. It would take me about 30 minutes to get into the shower every morning because of the burning pins and needles feeling. I also couldn't do dishes without gloves on. I was on much too high a dosage, although my trough didn't indicate this.

Lowering my dosage improved things significantly. Now I have a hard time getting -out- of the shower once again

What is your son's cyclosporine dosage per kg of his body weight?
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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