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Old Fri Oct 29, 2010, 07:24 PM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Quote:
Originally Posted by squirrellypoo View Post
Ooh that's so soon, how exciting! So if you end on Black Friday, when do you start?

. . .

And I just wanted to say how nice it is to have nurse specialist on email - both my pre- and post-transplant nurses were always on email and it makes it just SO convenient to pop over questions as you think of them.
Hey Melissa,

Thanks for the info on your experience with Campath. I am hoping not to have itchy rash, but, if it's over quickly, I'm sure I can deal with it. I've been told to expect to feel like I have a seriously bad case of the flu for a couple or three days -- including chills, the shakes, etc.

It's a 12-day stay at NIH, 11/15-26, if all goes well.

I really wish my local hematologist was more email friendly! I wind up faxing his triage nurse (who is outstanding), she calls him and then calls me. That's nuts! I read an article on the Cleveland Clinic that talked about their new system that has docs on email; your labs accessible via the web, etc. I would love that. It makes me nuts to have to pry my labs and other records out of the bureaucrats in the medical records department.

Take care!

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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